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Pencil illustration by Martha Perkse of a girl in a motorized wheelchair towing 5 children behind her.

 

Advocacy Organizations

Action DD (www.actiondd.org)
American With Disabilities Act Technical Assistance  (www.adata.org)
Children's Defense Fund  (www.childrensdefense.org)

Community Employment Alliance (www.communityemploymentalliance.org)

Consortium for Citizens with Disabilities  (www.c-c-d.org)
Disability Rights Washington      http://www.disabilityrightswa.org

Disabled Peoples' International  (www.dpi.org)
Down Syndrome Research Online Advocacy Group  (www.dsoag.com)
Easter Seals  (www.easterseals.org)
Family Voices  (www.familyvoices.org)
March of Dimes -- Washington Chapter  (www.marchofdimes.com/washington)
National Association of State Directors of Developmental Disabilities Services  (www.nasddds.org/TeleconferenceSeries-Advocacy.shtml)
National Organization on Disability  (www.nod.org)
Open Doors for Multicultural Families (www.multiculturalfamilies.org)
Parent to Parent (P2) (http://www.p2pusa.org/))
Parent Pals.com  (http://parentpals.com/gossamer/pages)
Partners in Policy  (http://www.partnersinpolicymaking.com)
People First of Washington (http://www.peoplefirstofwashington.org/)
Tacoma Area Coalition of Individuals with Disabilities  (www.tacid.org)
The National Association for the Dually Diagnosed  (www.thenadd.org/)
Self Advocates Becoming Empowered  (www.sabeusa.org)
Self Advocacy Online (http://www.selfadvocacyonline.org/)
Speaking For Ourselves  (www.speaking.org)
TASH  (www.tash.org)
The Arc of Grays Harbor (www.arcgh.org)
The Arc of King County  (www.arcofkingcounty.org)
The Arc of Kitsap/Jefferson Counties (www.arckj.org)
The Arc of Snohomish County www.arcsno.org
The Arc of Southwest Washington (www.arcswwa.org)
The Arc of Spokane (www.arc-spokane.org)
The Arc of TriCities (www.arcoftricities.com)
The Arc of Washington State  (http://www.arcwa.org/)
The Arc of Whatcom County (www.arcwhatcom.org)
The Arc of Yakima County (arcofyakimacounty@gmail.com)
The ArcLink  (www.thearclink.org)
The Council For Disability Rights  (http://disabilityrights.org)
Washington State Developmental Disabilities Council (www.ddc.wa.gov)

Aging & Developmental Disabilities

Aging & Disability Services Administration  (www.adsa.dshs.wa.gov)
British Columbia Association for Community Living  (http://www.bcacl.org/)
Center on Aging and Disabilities  (www.cad.med.miami.edu)
Informative Fact Sheets for Older Adults and Family Caregivers (http://epa.gov/aging/resources/factsheets/index.htm)
National Down Syndrome Society (http://www.ndss.org/)
Resources on Aging with Intellectual/Developmental Disabilities  (http://www.rrtcadd.org/Resource/Publications/Info.html)

Alcohol and Substance Abuse

Developmental Disabilities/Substance Abuse  (www.mass.gov/mddc/documents/ddsablueprint.doc)
The Substance Abuse Resources & Disability Issues (SARDI) Program  (www.med.wright.edu/citar/sardi/index.html)
National Association on Alcohol, Drugs and Disability Inc.  (www.naadd.org )
National Clearinghouse for Alcohol and Drug Information  (http://health.org)

Arts and Disability

National Arts and Disability Center (http://nadc.ucla.edu/)

National Institute of Art & Disabilities  (www.niadart.org)
Sprout Film Festival  (www.gosprout.org/film)
VSA Arts  (www.vsarts.org)

Asperger's Syndrome

A.S.P.E.N.  (www.aspennj.org)
Asperger's Disorder  (www.aspergers.com)
Families of Adults Afflicted with Asperger's Syndrome (FAAAS)  (www.faaas.org)
KidsHealth for Parents: Asperger's Syndrome  (www.kidshealth.org/parent/medical/brain/asperger.html)
Yale Developmental Disabilities Clinic  (http://info.med.yale.edu/chldstdy/autism/aspergers.html)

Assistive Technology

Family Center on Technology and Disability  (www.fctd.info)
Washington Assistive Technology Alliance  (http://watap.org/)
Washington Assistive Technology Foundation  (www.watf.org)

Autism

Autism Distance Education Network  (www.albany.edu/psy/autism/autism.html)

Autism Guidebook for WA State (http://here.doh.wa.gov/materials/autismguidebook/13_AutismGd_E10L.pdf)
Autism National Committee  (www.autcom.org)
Autism Outreach Project  (www.esd189.org/autism)
Autism - PDD Resources Network (Washington)  (http://www.autism-pdd.net/washington-autism-resources/)
Autism Research Foundation  (www.ladders.org)
Autism Research Institute  (www.autism.com)
Autism Society of America  (www.autism-society.org)
Autism Society of Tacoma/Pierce County  (www.homestead.com/autism_society_tacoma)
Autism Society of Washington  (www.autismsocietyofwa.org)
Autism Speaks (http://www.autismspeaks.org/index2.php?intro=1)

Autism Now (National Autism Resource & Information Center) http://www.autismnow.org
Center for the Study of Autism  (www.autism.org)
FEAT (Families for Early Autism Treatment)  (www.feat.org)
Geneva Centre for Autism  (www.autism.net)
MAAP Services for Autism and Asperger Syndrome  (www.maapservices.org)
Online Asperger Syndrome Information and Support  (www.aspergersyndrome.org)
TEACCH (Treatment and Education of Autistic and Related Communication  (www.teacch.com)
The Mind Institute, UC Davis  (www.ucdmc.ucdavis.edu/mindinstitute)
University of Miami Center for Autism and Related Disabilities (http://www.umcard.org/)
University of Sunderland Autism Research Unit  (http://www.espa-research.org.uk/)
University of Washington Autism Center  (www.depts.washington.edu/uwautism)
WA State Dept. of Health (http://www.doh.wa.gov/YouandYourFamily/IllnessandDisease/Autism.aspx)


Blind/Visually Impaired

Community Services for the Blind and Partially Sighted  (www.csbps.com)
National Information Clearinghouse on Children Who are Deaf-Blind  (http://www.nationaldb.org/)
Washington State Dept. of Services for the Blind  (www.dsb.wa.gov)

Brain Injury

Brain Injury Association of Washington  (www.braininjurywa.org)
Brain Injury Association, Inc.  (www.biausa.org)
University of Washington School of Medicine, Dept. of Rehabilitation Medicine  (http://depts.washington.edu/rehab)

Cerebral Palsy

American Academy for Cerebral Palsy and Developmental Medicine  (www.aacpdm.org)
Cerebral Palsy Connection  (www.cpconnection.com)
March of Dimes  (http://www.marchofdimes.com/baby/birthdefects_cerebralpalsy.html)
National Institute of Neurological Disorders and Stroke  (www.ninds.nih.gov/disorders/cerebral_palsy/cerebral_palsy.htm)
United Cerebral Palsy  (www.ucp.org)

Children

Brave Kids.org  (www.bravekids.org)
Child Development Institute  (www.childdevelopmentinfo.com/learning/learning_disabilities.shtml)
ComeUnity.com  (www.comeunity.com/disability/cerebral_palsy)
Connect for Kids  (http://sparkaction.org/)
Department of Early Learning (www.del.wa.gov/)

NICHCY (National Information Center for children and Youth with Disabilities)  (www.nichcy.org)

 

Deaf and Hard of Hearing

Deaf Linx (http://www.deaflinx.com/)

Disability Studies

Canadian Centre on Disability Studies  (http://www.disabilitystudies.ca)
Center for Disabilities and Development  (http://www.uihealthcare.org/cdd/)
Center on Human Development and Disability  (http://depts.washington.edu/chdd)
Center on Human Policy  (http://thechp.syr.edu)

Disability History  http://www.disabilityhistorywiki.org

Human Services Research Institute  (http://www.hsri.org/index.asp)
Smithsonian National Museum of American History (Disability Rights Movement)  (www.americanhistory.si.edu/disabilityrights/welcome.html)

Down Syndrome

Down Syndrome Educational Trust  (www.downsed.org)
Down Syndrome Health Issues  (www.ds-health.com)
National Down Syndrome Society  (www.ndss.org)
National Association for Down Syndrome  (www.nads.org)
The Canadian Down Syndrome Society  (www.cdss.ca)

Early Intervention

Infant Toddler Early Prevention Program  ( http://del.wa.gov/ESIT/)

Employment

Best Buddies International  (www.bestbuddies.org)
Gladnet  (www.gladnet.org)
JAN (Job Accommodation Network)  (janweb.icdi.wvu.edu)
National Collaborative on Workforce and Disability   (http://www.ncwd-youth.info/)
U.S. Office of Disability Employment Policy  (http://www.dol.gov/odep/)
Office of Employment Support Programs  (www.ssa.gov/work)
Washington Initiative for Supported Employment (http://www.theinitiative.ws/)
Work Opportunities  (www.workopportunities.org)
Your Ticket To Work (https://yourtickettowork.com/web/ttw/home)

Epilepsy

British Epilepsy Association  (www.epilepsy.org.uk)
Epilepsy: Questions & Answers (Southern Illinois University)   (www.siumed.edu/neuro/clinic/epilepsy/QuestionAnswers.html)
Epilepsy.com  (www.epilepsy.com)
Epilepsy Foundation  (www.efa.org)
National Institute of Neurological Disorders and Stroke  (www.ninds.nih.gov/disorders/epilepsy/epilepsy.htm)
National Society for Epilepsy  (www.epilepsynse.org.uk)

Family Support

Beach Center on Disability  (www.beachcenter.org)
Parents Helping Parents  (www.php.com)
The Fathers Network (www.fathersnetwork.org)

Fetal Alcohol Syndrome

Fetal Alcohol Spectrum Disorders Center for Excellence (www.fasdcenter.samhsa.gov)
U. of Washington School of Medicine Fetal Alcohol and Drug Unit (http://depts.washington.edu/fadu)

Health Portals

Disability Resources.org (www.disabilityresources.org)
HealthFinder.gov  (www.healthfinder.gov)
Health.gov  (www.health.gov)
InteliHealth  (www.intelihealth.com)
MayoClinic.com  (www.mayohealth.org)
Medline Plus  (http://medlineplus.gov)
Network of Care (http://www.networkofcare.org)

Healthcare

Adolescent Health Transition Project  (www.depts.washington.edu/healthtr)
Center on Human Development and Disability  (www.depts.washington.edu/chdd)
Children's Hospital & Regional Medical Center  (www.seattlechildrens.org)
Family Voices  (www.familyvoices.org)
National Network of Libraries of Medicine (http://nnlm.gov)
SafetyNet.US (www.isafetynet.org)
Washington State Home Care Quality Authority (http://www.hcrr.wa.gov/default.htm)

Independent Living

Community Living Exchange (www.cshp.rutgers.edu)
Housing and Urban Development (www.hud.gov/groups/disabilities.cfm)
Independent Living (www.independentliving.org)
Independent Living Research Utilization at TIRR (www.ilru.org)

Inclusion

Inclusion.com  (www.inclusion.com)
Institute for Community Inclusion  (www.communityinclusion.org)
Institute on Community Integration  (http://ici.umn.edu)
Inclusion Research Network  (www.inclusionresearch.org)
Kid Source Online  (www.kidsource.com)

Legal

Columbia Legal Services (http://columbialegal.org/)
Council of Parent Attorneys and Advocates  (www.copaa.net)
National Guardianship Association (www.guardianship.org)
Law, Health Policy & Disability Center  (http://disability.law.uiowa.edu)
Disability Rights Washington (http://www.disabilityrightswa.org/)
Northwest Immigrant Rights Project (http://www.nwirp.org/)
Northwest Justice Project (http://nwjustice.org/get-legal-help)
Wrightslaw  (www.wrightslaw.com)

Media

Disability History Museum  (www.disabilitymuseum.org)
Disability World  (www.disabilityworld.org)
Enabled Online  (www.enabledonline.com)
Exceptional Parent Magazine  (http://www.eparent.com)
Family Village  (www.familyvillage.wisc.edu/index.htmlx)
Mainstream  (www.mainstream-mag.com)
On A Roll Radio  (www.onarollradio.com)

Medical/Medication

Harvard Health Publications  (www.health.harvard.edu)
MedlinePlus (http://www.nlm.nih.gov/medlineplus/)

Medscape  (www.medscape.com)
Merck Manual  (http://www.merckmanuals.com/home/index.html)
National Organization for Rare Disorders (http://www.rarediseases.org/)
National Institute of Neurological Disorders (http://www.nih.gov/about/almanac/organization/NINDS.htm)
Prescription Drug Info  (www.prescriptiondrug-info.com)

Positive Behavior Support

Michigan Positive Behavior Support Network  (www.bridges4kids.org/PBS/PBS.html)
University of Delaware Positive Behavior Support Project  (www.udel.edu/cds/pbs)

Prader-Willi Syndrome

International Prader-Willi Syndrome Organization  (www.ipwso.org)
Prader-Willi Syndrome Association  (www.pwsausa.org)

 

QUALITY

The Council on Quality and Leadership

 

Recreation

Accessible Recreational Travel  (www.voaww.org/art)
Cerebral Palsy International Sports & Recreation Association  (www.cpisra.org)
Easter Seals  (www.easterseals.com)
Kids Camps  (www.kidscamps.com/special_needs/developmt_disability.html)
National Center on Physical Activity and Disability  (www.ncpad.org
Special Olympics  (www.specialolympics.org)

Research

National Center for the Dissemination of Disability Research  (www.ncddr.org)

Self-Determination

Individualized Funding Information Resources  (http://members.shaw.ca/bsalisbury)
National Program Office on Self-determination  (www.self-determination.org)
Neighbours Inc.  (www.neighbours-inc.com)
Self Determination Synthesis Project  (www.uncc.edu/sdsp/home.asp)
Speaking for Ourselves  (www.speaking.org)

Special Education

All Kinds of Minds  (www.allkindsofminds.org)
Council for Exceptional Children  (www.cec.sped.org)
International Journal of Special Education  (www.internationaljournalofspecialeducation.com)
New Horizons for Learning  (www.newhorizons.org)
Office of Special Education Programs  (www.ed.gov/about/offices/list/osers/osep/index.html)
Partners in Education  (www.partnersinpolicymaking.com/education)
Wash. State Office of Superintendent of Public Instruction  (www.k12.wa.us/specialed)
PACER Center (Parent Advocacy Coalition for Educational Rights)  (www.pacer.org)
Washington PAVE (Parents Are Vital in Education)  (www.washingtonpave.com)

Transportation

Wash. State Agency Council on Coordinated Transportation  (www.wsdot.wa.gov/acct/default.htm)

U.S. Government

The Access Board  (www.access-board.gov)
Center for Medicaid and CHIP Services (CMCS):  http://www.medicaid.gov/

Centers for Medicare and Medicaid Services  (http://www.cms.gov)
Centers for Disease Control and Prevention (www.cdc.gov/ncbddd/dd/default.htm)
DisabilityInfo  (www.disabilityinfo.gov)
FirstGov - The official website for searching the US Government  (http://firstgov.gov)
National Council on Disability  (www.ncd.gov )
President's Committee on People with Intellectual Disabilities  (http://www.acf.hhs.gov/programs/aidd)
US Dept. of Health & Human Services (http://www.hhs.gov/)
US Dept. of Justice - Americans with Disabilities Act  (www.usdoj.gov/crt/ada/adahom1.htm)
The White House – Disabilities Issues (http://www.whitehouse.gov/issues/disabilities)



Artwork reprinted by permission of Martha Perske from PERSKE: PENCIL PORTRAITS 1971-1990 (Nashville: Abingdon Press, 1998).

Last updated: May 06, 2013 | Privacy Notice

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